"About as welcome as a leper in a hot tub, this monster sucks the life outta the party. Have a plan; stick to it. You ain't doin' anyone any favors if you're gulpin' air like a fish outta water. You may not know when this monster is gonna show up, but be ready to show it the business side of yer boot."
Call Bobby
Neuromuscular Disease
"This bastard'll make you feel like your body ain't yer own. It's clever, too. But it ain't more clever'n you. At the end of the day, yer body is yours. Stay rested, don't back down, and do what y'can with what you control, idjit."
Cardiovascular Disease
"A bum ticker's nothin' to joke about. Don't shove it to the back burner and forget about it...if ya do, don't come lookin' for me when everything goes up in flames. Get yerself checked out. Regularly. I wouldn't chance it, and you shouldn't either. The clock's ticking...don't be an idjit."
Teething Child
"Back when I was a pup, we just rubbed a little whiskey on that youngun's gums, but I ain't saying that's what you should do nowadays! Now, I'm not preachin' about how you should rear up your kids, that's entirely up to you, but here's some insight from others that have a heap more experience with kiddos teethin' than I ever will."
Multiple Sclerosis
"There ain't many things that'll jerk yer tail in a knot quicker than yer body giving up before the rest of ya. This monster deep fries your wiring faster than an Oreo at a carnival. Keep yer socks on and start puzzlin' a plan together. Here's a whole heap of pieces to get you started."
Night Terrors
"You'd think goin' through shit once would be enough - but sometimes, you get that dream root in yer system and your worst nightmares come to life. I can't visit yer dreams to save ya, but I've got some weapons y'can take in with you. Get gankin', kid."
Cystic Fibrosis
"The way I see it, you're gonna wanna give up. Don't. Keep hunting for the right combination that unlocks the chains that this monster has on ya. I want ya to repeat after me: I CAN DO THIS. Now don't prove us wrong, ya moron."
- Research
- Silver bullets
- Fund the hunt
- For caregivers/parents
- Salt circle
- Battle Buddy
- Amulets
- Get tech on your side IOS Google
Primary Ciliary Diskinesia
"When breathin's tougher than a two dollar steak, it's past time to start looking for answers. Take this bull by the horns and work out a plan that'll get you heading in the right direction."
Failure
"Failure is part of life, kiddo. If you don't fail, you don't learn, and let's face it, if you don't learn, y'never change. What I'm trying to say is, don't let success go to yer head and don't let failure get to yer heart. You can change yer path without changing your goal."
*see Self-Hatred, Discouragement, Anxiety, Guilt, Lousy Day
Life Support Decision
"When y'get yer noggin' ventilated by a Leviathan, it makes ya ponder the benefits of life support. I'm glad I had a few extra moments with my boys, but that don't mean you're in the same place. You've got some big decisions up ahead, and only you can make that call. "